Spiritual, Religious, and Existential Concerns of Children with Life-limiting Conditions

While spiritual care is recognized as a core domain of palliative care, there are very few research studies that directly address spiritual care in pediatric palliative care.  To address this lack of research, Scott (2023) and colleagues sought to identify and describe the components of spiritual care for children with life-limiting and life-threatening condition.  The study included interviews with children with any life-limiting condition, their parents, caregivers, siblings and health care providers.  Identified spiritual concerns included: living life to the fullest, meaning of life and leaving a legacy, uncertainty about the future, determination to survive, accepting or fighting the future and role of religion.  This study provides support for health care providers to optimize the wellbeing of children receiving palliative care by working with children to identify things that provide meaning and developing a plan to achieve them.  Read more…



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