Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review

Children’s hospice palliative care (or pediatric hospice palliative care) is an active, holistic approach to care which focuses on relieving the physical, social, psychological, and spiritual suffering experienced by children and families who face a life-threatening condition, and helping them fulfill their physical, psychological, social, and spiritual goals. To strengthen the evidence of the benefits of integrated pediatric hospice palliative care services, the effectiveness of these services must be addressed by demonstrating outcomes. Holmen and colleagues (2023) conducted a scoping review to provide an overview of patient-reported outcome measures relevant for children, adolescents, and young adults with life-limiting and/or life-threatening conditions eligible for pediatric palliative care. A total of 80 patient-reported outcomes measures were found in the included studies. The most frequently measured outcome was quality of life. Read more…