Family and informal caregivers providing hospice palliative care at home are undertaking a wider range of tasks where they typically have less support from professional caregivers.
Adverse effects reported were:
1.Negative effect on mental health (41%)
2.Negative effect on physical health (38%)
There are a vast number of resources readily available and provided for health care teams to support individuals in their palliative care and/or end of life journey. However, the individual’s informal caregiver is often underestimated during this process and can often feel as though they are not receiving adequate support, resources, treatment, and services to help them be the best caregiver they can be.
This initiative is designed to further strengthen the capacity of informal caregivers who help their loved ones to remain at home at End of Life. We welcome you to access a comprehensive set of caregiver modules with the goal of providing support through information and resources to caregivers.
These modules cover a wide range of topics:
- What do People with a Life-limiting Illness Want?
- How to Manage your stress, guilt, anger, depression?
- Pain: How to Recognize It and How to Help?
- How to Communicate effectively with family, doctors, helpers?
- How to Manage Bed Baths and Personal Hygiene?
The modules are free to access in a variety of formats:
- Electronic web page
- Downloadable and printable PDFs
- Transcribed audio clips.
They are available in:
- First Nations, Inuit and Metis
Each module offers:
- What you need to know
- Walk in these shoes (case scenarios)
- Available resources
Link to access the modules: